These links will take you to the website's main sections:
The Foundation for IgA Nephropathy
Welcome to the Foundation for IgA Nephropathy. The Foundation is a non-profit charity incorporated in the United States. Its primary mission is to operate the email group known as the IgA Nephropathy Support Group. The support group was founded in 2000, and the Foundation itself was incorporated in 2005. The support group currently has over 2000 subscribers, who post hundreds of IgAN-related messages every month. It is a very active, friendly and positive group, and we invite everyone with an interest in IgA nephropathy and chronic renal failure to participate.
The IgA Nephropathy Support Group is a peer support group, currently operated on Yahoo Groups. A peer support group is one in which the participants and the moderators are also patients, as opposed to health professionals. Many of our members are longtime patients who collectively have gone through the entire experience of kidney disease, from initial diagnosis to end-stage renal disease (which includes kidney transplant and all forms of dialysis).
While we conduct most of our activity in the support group, the website itself serves as the FAQ (frequently-asked questions) resource for the Foundation and the support group. Many of your questions about IgAN can be answered by reading through the website using the easy navigation bar to the left of each page. The website is highly-regarded, and many nephrologists refer their patients to it for basic information about the disease. The FAQ attempts to answer most of the questions that come up frequently on the support group. This helps the moderators and members concentrate as much as possible on providing actual support.